November 18, 2025

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The big news from today is that he had his PICC line removed.  That video was the line being pulled out.  It is an operation to be inserted but an easy out.

Afterwards he was swinging his arm around, thrilled it was gone.  He had to agree that any time they need more blood tests than a simple finger poke can provide he would get an IV poke.

A very minor rash but he is now off tacrolimus, the immune suppressant drug.  We're hoping for the best.  They are still waiting for approval to get him on the chemo drug he was on before transplant.  That will likely start next week.  

They are very careful of rashes.  Pushing sunscreen whenever he is outside just in case sun and a GVHD rash can be confused. 

GVHD is a symptom of transplant they watch for but they're aren't any tests or sure answers to prove that it is GVHD.  A lot of watching and experience.

Closer all the time to a full, “normal” life.  Is there any such thing as normal?!


Nighttime picture of Stella with her glow ball and light up collar.

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