Lovingheart

I said that lately, Marlon has been waking up earlier than usual, around 630.  Previously his norm was around 8.  This morning, I heard him go to the washroom around 6, after which he typically doesn't fall back asleep.  By 8, I was starting to wonder.  By 9, I had checked on him, and it was finally 930 when he woke up.  Though he said he was still tired, I have no doubt that sleep did him good (all right, my grammar mind is saying 'well' or 'good'.  In a situation like this I would rearrange the sentence but I will keep it as is). He was very disappointed when he woke up to realize he had missed playing Minecraft with his friends that only play on the weekend.  I have strict orders to not let him sleep too late again tomorrow. His food cravings are alive and well but his ability to eat is diminished.  He had something in mind for breakfast but acknowledged he probably would not be able to eat.  He snacked a little throughout the day and when Linsy wanted poutine fo

Marlon woke up at 530 this morning to use the washroom.  I didn't think he'd fall back asleep but he did.  I actually had to wake him up just before 8 to get out the door. The outpatient oncology clinic will be undergoing renovations and today was moving day.  So while they moved to another ward, Marlon had his chemo at the inpatient ward.  I was nosy and saw who was on the ward (just by looking at the name tags on the wall).  I was glad to see a particular girl was out as she had been in for a while, and had reacted negatively to one of the drugs.  We were there a bit longer than I had anticipated and on the way home Marlon was asking about lunch, not liking what I had brought along.  He got me to buy him something but then was barely able to eat it.  Not much appetite the whole day and did end up throwing up in the evening.  He didn't look too good either.  Two days in a row takes its toll.  We are hoping that was the last time he will need to remain accessed overnight.  

As I was going to bed last night, Marlon was awake and upset because he felt so bad.  Nauseous and uncomfortable.  Luckily it didn't last, and he slept the rest of the night. His blood counts are fine and he got the day's chemo.  Because we have to go back in the morning, he remained accessed.  I am surprised that after the initial complaints about the poking and discomfort, he eased up and didn't seem too awkward with the accessed port. Today's food craving was for a spinach bun like we used to get at the Guelph farmer's market.  Unfortunately, the woman that made them is no longer earth-bound.  On the way home from the hospital, we looked online to see if we could find something similar but no luck.  Louise stopped at Sobeys and I ran in and bought spanakopita.  Not quite what he had in mind but it was ok. Louise is so great that way.  She will ask if we would like to make any stops, knowing Marlon is full of food cravings.  She doesn't mind going out of the w

Lately, Marlon has been the first one up.  It has been over a month, that he has been waking up early.  Often, that means he will just hang out on his phone until I get him breakfast.  This morning, he was reading.  Grateful for the change. I was in the kitchen and saw two people walk by.  It turned out it was my friends, the two Kim's, wanting to know if I wanted to go for a walk.  We haven't gone for a walk together in two years.  What a treat!  Marlon was anxiously waiting for lunch when I came back home but he barely ate anything.  He hasn't been feeling great overall with minimal appetite. I was entertained by a butterfly, slowly flying around quite close to me, at one point almost landing on my foot.

This morning, we had more tears about boredom.  Everything is boring.  The only thing he likes is listening or playing on devices.  He got over it and wrote a story, part II of Pickle Bob.   He called this picture, The glorious, golden pickle, and the solved Rubik's Cube  This afternoon, I decided I'd walk and run errands.  I knew there was a chance of rain but in my naive state, I thought it would start while I was near the end and maybe I'd ask for a ride home with my groceries.  First stop the library, and just as I picked up the book waiting for Marlon, the rain started.  I waited under the overhang, figuring the downpour would stop soon.  I even turned down two offers of a drive. Eventually, I gave up waiting and got wet.  It was a little chilly walking in the rain.  By the time I got to the bank, I decided there was no way I was going into a cold grocery store so I walked home.  It was good to dry off.   I thought this evening I'd take the recycling to the road an

No geese floating on the pond today.  Marlon and I wandered around a little.  Short jaunts, partially because of the heat, and because his legs hurt after 10 minutes of walking.  He looks so awkward when walking and said today it's partially because his right foot isn't strong enough to push off properly. I was thinking that by the time he reaches maintenance he will still have another year and a half of treatment.  It won't drag him down as much but from where I stand that sounds ridiculous and overwhelming.  Argh! Marlon wrote a short story (not much more than a paragraph) about a pickle, his friend the sweet potato, and mayor cabbage.  He drew a picture to go along with it.