Posts

November 30, 2020

Image
Today's big project was chocolate making.  Along with the book from Damon, came cocoa butter and a recipe.  Marlon was very excited to make it, and we did one batch mid-morning.  When we looked the other day we found coconut milk powder so we used that instead of regular milk powder.  The chocolate was pretty tasty.  Marlon made a little video. https://youtu.be/46ALW7ZvPvg Early afternoon, Marlon and I walked to the mailbox (in the rain), where we did a trade with Heather.  Milk powder for coconut milk powder. So we made another batch of chocolate with the other powder.  Not quite sure what we did wrong (too hot?) but it separated a bit. Still tasty stuff!   Marion had minecraft time with friends.l.  At one point in the evening when I was getting supper, Thomas came to the kitchen and looked at me to see if I was wearing headphones.  I often do, but I was not. Thomas was wondering if he might be the only one without.  Paco, Linsy, and Marlon, at the table, all plugged into headphon

November 29, 2020

Image
  A beautiful November day today.  Yesterday when driving past a hiking trail in Guelph, the road nearby was full of overflow from the parking lot.  Cars on both sides of the street.  People out enjoying the day.  Though I didn't go down that road today, I imagine it was the same. I drove Linsy to work this morning.  She had hoped to have her license by this time but another casualty of the times.  She completed in-class driver's education in March, right before shut down.  In-car is only just happening now. One thing I was doing today was sorting some pictures and uploaded a couple of videos.  Here is one of Linsy's skating. https://youtu.be/nBFFcKjUcqI Marlon had a pretty good day.  I don't really know what happened to the morning.  I think part of it is that he has started listening to an audiobook.  He zones out a lot more. Paco and I drove to a neighbour's down the road, to collect some more gravel.  Our laneway gets pretty muddy when it is wet.  Filled up sev

November 28, 2020

Image
Appreciating normalcy Going about our day with little thought or notice of what has been, what is, and what is yet to come. Marlon and I went to the market this morning.  An uneventful trek but nice to do.  Even though the market is so different from what it was, the people are still the same. Shortly after getting home, I took Linsy to work, and stopped at the library to pick up a book waiting there for Marlon. Later in the day (4-7) Marlon did a workshop.  A seasonal one, learning the programming and use of laser printers.   He made this ornament While he was there I picked Linsy up from work.  I didn't do much otherwise, just a lot of driving back and forth. With things being so calm and 'normal', I think more about going back to work.  I don't know what is coming as far as Marlon's treatment is concerned, so I can't make that step yet.  I know he won't be happy when I do, and it will be a gradual thing.  We continue on, and appreciate each day.

November 27, 2020

Image
A home day and a good one.  Linsy had a PD day today, so Marlon jumped on the computer after breakfast.  Marlon uses Linsy's school computer for minecraft. I got him to come outside with me midday.  He doesn't want to help out.  Nothing new.  He has not been a willing helper for chores of any sort.  I split kindling and then wood.  Marlon hung out, playing with his whip.  Then he came inside and finished the craft he started on last night.  Lanterns. We took these pictures this evening in the dark. I was outside longer than him and then I remembered we were to walk to our neighbours, so I got Marlon and we walked to the road.  Picked up the soup she had made and was sharing with us.  The dog across the street was trying to follow another dog walking down the road with his owner.  Marlon and I got the dog to follow us back onto his property and away from the road.   After lunch, we walked to the road again.  Marlon's friend, Damon, and his mom dropped by with a package and

November 26, 2020

Image
I am reminded, it is a good thing Marlon is feeling bored again.  Remembering all those times, the days passed, and he didn't do much or move much.  Maybe listening, but couldn't concentrate to read. This morning he drew some, read some and was bored.  Wanted computer time.  Antsy.  He does have things that need tidying so we did some of that together and he did get computer time. We went out after lunch.  He hung out with a friend while I ran some errands.  They did various things, including playing ping pong.  He can do that, the movement, the mobility… In the evening Marlon started working on his next kiwico kit.  A science-based craft he gets every month. A few times he got frustrated to tears.  I suggested he wait until morning to finish. Marlon came with me to pick Linsy up from skating, and we took a slow drive home to admire Christmas lights. And again, when he is climbing under the covers at bedtime I remember two months ago, and what an effort it was to move to get in

November 25, 2020

Image
T oday was a home day for Marlon.  Quiet and peaceful.  Reading and computer time.  Midday Linsy and I went out for our own pokes.  Blood tests from our doctor's appointment.  We are all well. Linsy worked the evening and skating later so the day was more about driving here and there. Paco was up late last night preparing for a presentation.  It was 430 by the time he finally went to bed this morning and up again at 8 this morning.  I heard it, but luckily, Marlon's sleeping is good and not easily disturbed. We did go out for a while in the afternoon.  Played catch with snowballs. Paco took time out this evening to play a game of euchre.  Thomas and I won against he and Marlon. When Marlon got into bed, just as I was leaving to take Linsy skating, he was feeling very bad and nauseous.  He didn't throw up but still not feeling great.  Would be nice to see him have a day completely free of nausea, and with a strong appetite.  Moira was asking about his mobility.  It is much b

November 24, 2020

Image
Up early and to the hospital. The door to the finger poke lab was closed, and I tried to open it, but it seemed to be locked.  We waited around a while and someone came along and just opened it.  Apparently, I didn't try hard enough. Once upstairs, the nurses were saying he was to have the procedure regardless of his blood counts, so they accessed him.  We were shown that Marlon's platelets are so much better.  Actually in the normal zone at 230 (last week Tuesday was 43 and Thursday was 80).  His neutrophils however went down from .2 to .1.  We waited around for a while and then the doctor came in and said that he would not be having the procedure (bone marrow pull) after all.  They can wait beyond day 42.  Maybe Thursday, maybe next Tuesday. Sent home again without having anything done except being accessed and then de-accessed. Some others were going on a hike this afternoon so we decided to join them.  Marlon was ambivalent about going.  It was fun though.  Ten kids from 8-