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Showing posts from August, 2026

June 2026

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  I saw something good the other day in his test results.  The Philadelphia chromosome is no longer detectable.  The PH+ part of his ALL (leukemia) has made it harder to fully heal.  Over thirty years ago, this form of leukemia had a lower recovery rate. Even a year ago, when Marlon was essentially cancer free, the Philadelphia chromosome was still positive.  The transplant cured that (August 5 marked the one year anniversary since Marlon hasn't been himself aka transplant.  I haven't had a chance to speak with the doctor about this yet.  First time since the cancer came back that he has had a whole month between appointments.  They have wanted him to come in but his busy summer schedule hasn't allowed it. He did have a visit at sick kids in June after we requested it.  The transplant doctor confirmed that he was a “slow responder” and that while the GVHD in his mouth was much improved he would continue on steroids.  Just as the doctors ...