September 15, 2025

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There have been so many drugs involved in this process.  It is mind boggling. 

They started steroids to combat the GVHD.  Steroids are helpful but bring along a load of side effects that require more drugs.  They are slowly weaning off the steroids to make sure he doesn't get more rashes.  Each week there are fewer drugs.

When we played ping pong today he had a paddle in each hand which gave him a greater challenge.  Hitting left- and right- handed consecutively.  We had a little boy (3 or younger) wanting to play along so we fit him into our game.  He could “ serve” - throw the ball across the table.  He used the paddle to push the ball around.  He was very upset when his dad said it was time to go.


This building was glowing pink as it was catching the morning sunlight.

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