August 3, 2025

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No chemo today but ATG again and that drug kicks butt.  He says his body feels like it is crumbling apart.  He hardly moved from the bed, partially because he doesn't have the energy and also because of all the wires attached to him, keeping a constant check.  He felt feverish at times during the day but his temperature never rose.

Definitely not very restful sleeping at the hospital but he did have a better sleep than the night before.  I am feeling a little bleary-eyed myself but count myself lucky that I had a few good night's sleep before this hospital time.

I had wondered how young one might be to get a bone marrow transplant.  Then I met a couple whose baby was three months old when he had his.  Though all has gone well, he is now eight months old, and will be going home soon.  He did get out of the hospital on day 17 post transplant but is still at RMH.

Transplants can happen for various reasons and for this baby it was a rare genetic disorder that was caught early on.

There is no better or worse with all these cases and all health issues.  There are highs and lows.  We just live life as it appears before us.


From a year ago.  Marlon appreciated increasing his strength by climbing trees.  One of the discussions we had before his being admitted was exercise.  He likes increasing his strength in natural ways.  He’d rather not sit in a chair and do stretches.

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