August 20, 2025

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Decent counts this morning.  No transfusions required.  Everything is going in the right direction including his liver which is getting stronger.  Because he didn't need any extra blood products today and because his weight is not going up (which signifies liquid retention), he was able to drink 600ml today.  Still not a lot compared to what he is used to but he enjoyed every sip of water.  He tried to eat some noodles but was only able to eat a couple of bites.

A while ago I was complaining about this low grade beeping that was apparent with a certain medication.  It took me a while but I finally figured out that when the brain is plugged in then the pump doesn't beep.  As I was excitedly explaining my discovery to a nurse, she knew the solution as well.  Now I am making sure the nurses that come into this room know that.  Not everyone gets as rattled by noises but there have to be others that notice it.


The ”brain” is the one in the middle where they program the information to direct the pumps.  This setup has four pumps.  The Brain speaks to the computer.  Double checking, sometimes things are quadruple checked to make sure the right drug is going to the right person.  Less often when an inpatient but Marlon regularly gets asked his birthday as an extra check to make sure they have the right person.

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