August 11, 2025

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He was pretty upset when he was told at bedtime (10:30) that he was going to get the drug to make him pee.  That definitely affects sleep.  They carefully chart input vs output and BMT patients can easily become bloated.  His blood pressure has also been running a bit high. 

Luckily, he had a half decent night’s sleep in spite of the peeing.  Never without interruptions and noise. 

He's been having more nose bleeds and that is a sign of low platelets.  On the 8th, his platelets were at 34 which is still very low but not low enough that they infuse.  The 9th they were 20, and yesterday when they went down to 10, he was given platelets.  This morning (they draw blood every morning at 4am) his platelets were at 3 so he received another infusion.  He got another bag in the afternoon as even after the first dose he was only at 2.  He will be getting more platelets at 2am and they'll check his counts again at 4.  The normal range is 173-361.

White blood counts are at 0.01.    Anything less than 4.23 is considered low but these counts are all part of the process.  The WBC and neutrophils are low to allow engraftment.  They don't want the host body to push out the donor cells.

The results of the MRI came back normal.  High blood pressure, not peeing enough, and headaches are interrelated.


Whenever we drove in Toronto during construction weather when the kids were young, we counted cranes.  Always so many at work in the city.  Here the CN tower was glowing in the evening sun with a crane close by.

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