July 31, 2025

He did ok today.  Definitely second half of the day is better for him.  Having to get up and be somewhere when he isn't feeling well starts the day off poorly.

Appointment this morning at 815 for his first TBI.  Pretty smooth and then on to hospital to get topped up with liquids and  more anti nausea medication.  While he was there, I checked us out of the hotel and into RMH.  A big facility that is amazingly well organized.  The frustrating issue is that Marlon can't be left alone in the building.  He is only in it today but in a month's time will be for about a month.  Under normal circumstances, he tells me what he is willing to eat, and I go get it.  I go for walks and he gets time away from me.  

No sense in worrying about it now.

Have I said how much I am spending on food!?  His appetite is quite poor so I am often buying things that he thinks he may be able to eat.  I am wasting a lot more food than I care to when he realizes he can't stomach that food after all.

In the afternoon we just hung out in the new room.  A pretty decent space.  I left him waiting for his afternoon TBI and bought some foods he was interested in and also moved more stuff from the car.  A lot of back and forth and once he was done we came back to our room.  A couple of nights a week, there is a communal dinner that is prepared so we both ate chili tonight.


A few days ago when I mentioned a woman banging the gong, I was asked what it is about.  This is the plaque above the gong.  There are bells, chants, and gongs to celebrate the end of treatment.  Marlon isn't there yet.  Last time, almost 3 years ago, he chose not to have the chant but wanted to quietly leave the hospital without fanfare.


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