May 5, 2025

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The blood sugar sensor kept going off in the night.  Low blood sugar.  I heard it beeping, thought to ignore it but worried, and then asked the nurses if I really needed to wake Marlon up to drink some juice.  Yes.  At one point the monitor showed the blood sugar at 3.4.  Even after the juice, the monitor was still beeping signifying low sugars.

Then around 6 this morning it continued beeping showing it was time to replace the sensor.  When we did finger poke to check blood sugar the levels were low but not that bad.  Frustrating to get so little sleep for nothing.  Now that his blood sugars are actually levelling out, he no longer needs the sensor and just checks himself before meals.

Other than that it was an uneventful day.  Tomorrow he will replace a chemo pill he has been taking for another one.  A step up.  This is one that targets the Philadelphia positive part of the ALL.  During the whole treatment last time around he had this daily pill.  Now he will continue with a similar chemo pill just amping it up slightly.

Thursday, he starts the immunotherapy.

Marlon was not feeling great today.  Still the sore throat.  Things still taste bad, and he just felt off.  Still bloated.  Headaches especially when moving.  Bruises in so many places.  A line of them along his belly. The backs of his arms.  Colourful.

Hopefully we can sleep tonight without the constant beeping.


The back of his arm.  A work of art.

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