May 6, 2025

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LP this morning.  Actually it was noon by the time it happened.  Marlon was hungry.  He used the waiting time to write a list of foods he wants and then he rated them.  Ease to acquire the food.  Taste of the food.  Things like soup, sushi, poutine, KD, hot dog,...

When he woke up and felt ready to eat, I had soup, sushi, and a salad waiting for him.  He gobbled the sushi and soup and then floated along in a blissed out state.  Sated and still high on drugs.  He decided he was going to have poutine for supper.  By 5, he was already starting to feel off.  We went for a walk outside after 7, and bought his food.  He wasn't able to eat much of it.  I wasn't surprised but disappointed to have paid almost $20.  Even with different anti nausea medications, he isn't sure he'll make it through the night without throwing up.

He got the new medication today.  Normally, the nurses give him what he needs, when he needs it.  They have their supplies and lists of who gets what. This one, I went to the pharmacy to pick it up.  Because the doctors had to apply for approval, they don't get it from the pharmacy but the patient picks it up.  When I saw the price tag on it, I understood why it was not a regular in the lineup.  $4,100 for a month's worth of pills.  I cried when I saw that.  So much.  Imagine if the patient had to pay that.  Thank goodness for the health plan that has it covered.  Canadian health insurance has a good many issues but we have been so lucky.

Yesterday, P came to Hamilton to get his cheek swabbed to be tested as a possible donor for Marlon.

Today, L went to Sick Kids to get her swab done.  Full siblings have a chance of being donors.  Cousins have the same likelihood as the general public.


While Marlon was still feeling fine, I went for a walk.  There is a long staircase up the side of the mountain.  Some nice trails and walks in the area.

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