Posts

June 18, 2025

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We had our online call with sick kids today to get more information about what is ahead.  Marlon, his siblings, his aunt, and I were present.  So much to consider. Hard to imagine. They are going with the 100% matched donor.  We don't get any information (except age which we don't know yet) about them until 2 years have passed  First off is radiation at the end of July.  Full body and the brain as well.  The brain because the cancer did present there when it relapsed.  Intense chemo and then the transplant.  All sorts of drugs and potential side effects are possible.  Feeling like garbage with zero immunity is a given.  Probably in the hospital for most of August and then out patient but close by for another 2 months. I like Marlon the way he is.  His brains and intelligence, his quirkiness, just him.  How will he make it through? Who will he be on the other side.  The chances are very high (98%) he will survive. Right now...

June 17, 2025

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LP this morning.  Smooth process.  When we went down to the ‘sedation room’ there was a little boy still in clinic who was whining because he was hungry.  It is hard not being able to eat before procedure and the younger ones don't understand why they are being denied food.  Last time around there was a nurse just back from her own cancer treatment and she had a renewed appreciation for what they go through. I thought they often let the youngers go earlier but Marlon was not made to wait longer. Speaking with someone that works on the ward and heard there have been several new cancer patients in the past month.  Four that are quite young.  I also heard that the blina is quite widely used now.  Back when Marlon was first diagnosed it was still in trial phase.  Good results so it is used in various cancer treatments. Once on the ward, they moved towards restarting the blina.  A couple of changes this time around.  Positive ones. The conten...

June 16, 2025

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Quiet day.  Sort of.  Knowing that Marlon will be admitted to hospital for a couple of days allows me to try to get as much done as I can in preparation.  The last couple of LPs Marlon has had have been pretty rough for a week or so with headaches and feeling low.  He doesn't expect much from the blina being reattached other than the inconvenience and a compounded low feeling. In general, he feels worse in the hospital. Picked some wild strawberries today. Yum

June 15, 2025

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Today was a good day.  Weather was nice, Father's day, and dinner at my sister's.  Marlon and his brother rushed off before most others ate to go watch HaHa Halton, an improv group that P has been a part of with an entertaining show. My sister's dog is getting older and it was funny to watch her.  She spends a lot of time, in different places of the property, barking at some thing or other.  A sweet dog but she likes to bark.  Luckily their neighbours aren't too close and it seems her bark is not as loud as it was in her prime. Her peonies are in full bloom.  The bushes around where we live are bursting and only just starting to open.  The plant on the top left is wild rose which is an invasive species.  Beautiful big bush, with a faint sweet smell.  

June 14, 2025

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When Marlon was visiting with his school friend, he learned his friends were going for bike rides during lunch break.  He went for a bike ride today as well as his walks.  Not a long ride but he was pleased with the result.  His legs were sore but he made it. He is working on one school subject and is waiting to hear about other ones.  The way he preferred to do it when homeschooling was one subject at a time.  Finishing the year's math work before starting on English.  Obviously in school for grade 9, he didn't have the choice.  Now that the next semester will be online, he is sayng he might like to do one subject at a time.  A year ago today, P graduated from UofG.  Mechanical engineering.  An emotional day

June 13, 2025

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It's weird the way things are.  I can forget what we are dealing with.  A day at home, Marlon's energy levels are good, and he's feeling fine.  Then I remember that he still has his chemo drugs to take.  Right. He went to a friend's house today and they enjoyed their talks and hanging out.  He was happy to have that time but he gets to hear what he's missing at school and as much as he doesn't want to be there, he misses not being a part of it. Next Wednesday, we have a zoom call scheduled.  Still no word on the donor but I am assuming it is not one of Marlon's siblings otherwise I imagine they would have heard.  I took several videos from a good thunderstorm last year.  The sky, the lightning.  Such beauty

June 12, 2025

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More dental work is done.  Pretty smooth process.  No complaints about his mouth. I always believed Marlon has a low tolerance to pain but obviously I don't know.  He has been through suffering with symptoms and then the treatment. I have taken a few quills out of Pan.  Ones that were missed.  If I can get a hold of them it is definitely better I take them out.  Another trip to the vet and he would go in fighting.  Some ask if he has learned his lesson and I don't think so.  If he saw another porcupine he would not hesitate to chase it.  Another special moon