May 1, 2025

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Another not so good night.  Platelets were brought in the night.  Normally he gets them during the day but they ordered them early because he had a procedure scheduled.   Transfusions needed to be done ahead of time.  Then he was awake for a while a bit later with the pain/nausea in his gut.  This is not plain nausea as it includes a lot of pain.  He didn’t throw up but thought he would.

He didn’t have to wait long to be brought down for the procedure.  In fact they woke him up.  Last word Marlon said as the anaesthesia was putting him to sleep was ‘falafel’.  Yes, another food craving.

Lumbar puncture (LP) where they use a needle to insert chemo drugs into the spinal fluid.  And a bone marrow where they remove some for testing.  Originally it was going to be tested again after 4 weeks of induction treatment but I think they are hoping for positive results to allow treatment to progress.  No matter what they will not decrease the number of days that steroids are given.

We’ll see what they have to say.

His brother came for a visit tonight.  We had dinner together and hung out.  Nice to see him again.

Marlon has had a private room since being admitted but the fan in that room is very loud.  This evening, I inquired about another room that had just been vacated.  I didn’t expect much but they immediately said we could change rooms.  Yikes!  Being so tired, I had really hoped to get to bed earlier but instead we were moving.  So much stuff!  Clothes, papers, books, food, and more.  Though the other room is a little more cramped it is much quieter. 


Being a rainy day, we have raindrops.  One is a picture shared with me, and one I took.

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