Lovingheart

I was really hoping that at this time Marlon would only be going to the hospital every three months.  After seeing him last week they were debating GVHD and also his mouth which was swollen and irritated.  On Tuesday the 13th, we were back at McMaster again.  They had taken him off the chemo drug imatinib to see if that would help his rash.  There was back and forth about medication for his mouth.  They first sent him a rinse but he has used it before and it is too uncomfortable and makes the problem worse.  Marlon's primary doctor from sick kids wanted to see him and his symptoms first hand.  A last minute appointment was set up for Wednesday January 14.  Work was able to find someone for my shift and we drove to Toronto.  More blood work, lots of questions and checking.  The rash is subsiding so maybe it was the imatinib.  He has received approval for the alternative chemo drug which he will start in a while.  We are glad he ...

Day 154 post transplant and it seems he may still be dealing with GVHD (graft vs host disease).  Hospital visit today and especially the past few days he has been noticing some things.  Skin is more dry than usual.  His mouth is very irritated.  A rash of sorts, red spots around his elbows and knees.  Again GVHD is a guessing game.  Marlon felt quite certain that this was something completely different, that the GVHD was long gone. I did wonder if it was bugs or a reaction to the bed.  L was here for a visit and I switched out his mattress and he was not comfortable with the change. More pictures, more tests, possibly more hospital visits as they observe and figure out what to do next. As far as my hand and wrist go, I complain too much.  The pain is a bit less and I can use my fingers a little more.  Some say it is good that I am left handed as it is my right hand but I realize how much I use both hands.  The arms work together and each...