February 8, 2021

I was happy to see Marlon playing with his Bionicles today.  I don't remember the last time he played with them.  I thought he was beyond playing.  Maybe he just hasn't been well enough to play. One time, his cousin asked him what he did all day.  Before diagnosis and before he started to get better, his days were long periods of sitting, staring off into space or plugged into book.  Zoned out and no energy.  So playing, bouncing off the walls, being energetic and also bored are all good things.

We prepare to go back to the hospital tomorrow.  Packing up all our stuff again as if we will be gone for a few days.  A food bag, devices, activities, clothes… It all adds up and so far we have lugged it back and forth three times.  What will tomorrow bring?!

I bought a wall calendar.  I don't remember the last time I had to buy one!  We always used the freebies.  While I was at it, I bought Marlon a daily origami calendar.  He got frustrated but persevered and made a few.  Hopefully, he doesn't give up too soon.


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