September 16, 2020

 September 16, 2020

Turns out Marlon was not really sleeping last night when he was moaning and restless.  It was close to midnight by the time he did throw up.  After that he finally slept and didn't get up this morning until almost 9.  

He did not feel much better.  He just barely managed to eat some breakfast and had to take 10.5 pills with it.  Didn't do much today.  Rested and probably had extra device time but he was feeling pretty bad.

Again he ate a smaller lunch and I took him outside for a bit.  When we got back in he rested and then finally had a nap.  When he woke up after 430, he was feeling a little bit better.  Nine pills with supper but he did manage to eat with lots of rests n between bites.

He just wanted to watch his own videos this evening and then the nurse came in with one more pill.  So we walked down to the cafe (I pushed him), got a hot chocolate and he pushed the wheelchair back to his room.  It was then that I noticed he was definitely better than he had been all day.  He had a snack to get the pill down.

And now he is tossing and turning, not super tired after the nap.  But I am glad the evening was a little better than the day.

Discussion has started about what to expect once he is discharged.  At first we will be coming back to clinic twice a week.  Not too much more chemo for the rest of the month after tomorrow's session.  Just the pills to take at home.  It will be an adjustment but I think we are both ready for the change.

What a way to gain perspective, being on this ward.  So many children, of all ages, with so many different forms of cancer.  Some just starting their journey like us and many that have been on this path for a while and it appears they have so much more to overcome.  So very grateful for the support that surrounds us and for the wealth of kind, caring people.


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