September 16, 2020

-

 September 16, 2020


Turns out Marlon was not really sleeping last night when he was moaning and restless.  It was close to midnight by the time he did throw up.  After that he finally slept and didn't get up this morning until almost 9.  

He did not feel much better.  He just barely managed to eat some breakfast and had to take 10.5 pills with it.  Didn't do much today.  Rested and probably had extra device time but he was feeling pretty bad.

Again he ate a smaller lunch and I took him outside for a bit.  When we got back in he rested and then finally had a nap.  When he woke up after 430, he was feeling a little bit better.  Nine pills with supper but he did manage to eat with lots of rests n between bites.

He just wanted to watch his own videos this evening and then the nurse came in with one more pill.  So we walked down to the cafe (I pushed him), got a hot chocolate and he pushed the wheelchair back to his room.  It was then that I noticed he was definitely better than he had been all day.  He had a snack to get the pill down.

And now he is tossing and turning, not super tired after the nap.  But I am glad the evening was a little better than the day.

Discussion has started about what to expect once he is discharged.  At first we will be coming back to clinic twice a week.  Not too much more chemo for the rest of the month after tomorrow's session.  Just the pills to take at home.  It will be an adjustment but I think we are both ready for the change.

What a way to gain perspective, being on this ward.  So many children, of all ages, with so many different forms of cancer.  Some just starting their journey like us and many that have been on this path for a while and it appears they have so much more to overcome.  So very grateful for the support that surrounds us and for the wealth of kind, caring people.

Comments

Post a Comment

Popular posts from this blog

November 10, 2022 (2)

-
Image
Today, I dropped Marlon off at outdoor school and met up with a friend I have only seen a handful of times in the last 20+ years.  She was in the area for the passing of a family member. i then went for a walk with Mina.  I watched and she poised herself in hunting position and pounced.  I saw a squirrel run up a tiny little tree but also heard this pitiful whining.  At first, confused, I wondered if she had pounced on a nest in the ground.  But the dog ran to me, crying and whining, holding up her paw.  We were a ways from home and she hobbled carefully home after we sat for a while and she calmed down.  She will often run the perimeter of fields, running this way and that.  I saw her longing to run the field as we made our way back but she was uncomfortable and limping. A short while later, I went to pick up Marlon and watched in amazement as he hobbled to the car.  Yes, he had hurt his foot within an hour of the dog hurting herself.  Both boy and dog are limping.  Just as they were
Read more

July 7, 2022

-
Image
On May 23rd, the week before the chemo that weakened Marlon enough to put him in the hospital, the dog, the boy, and I drove to Montreal. (I am aware of the use of the word 'go' when writing. In German, the verb 'to go' means walking. You don't 'go' in a car.) Before we left, as I was packing up the car, I noticed a fair sized spider web between the driver's side view mirror and the car. I left it alone, figuring the wind would blow it off. It was so nice to see Linsy and Moira and spend time with them. I have missed having Linsy around. It was neat that, when we got there, Olivia, Jamey, and Roka, their dog, were there. They live 15 minutes away from us but were there visiting their son. Mina was definitely happy to see Roka (and all the others too).   Mina got used to walking on sidewalks and being in the city. Other people and dogs, not so much. Moira has given me a belt with a dog lead on it for hands-free walking. It worked but was even bett
Read more

July 5, 2022

-
Image
Decision was made that Marlon was to go check blood counts on Monday.  We drove down to Hamilton together, quick finger poke, and then leave again.  A couple of times, we drove around the parking garage for almost a half-hour looking for a spot, but Monday was smooth.  Busy place. Blood counts are good so dental work begins.  Marlon's doctor was impressed with the dentist when she spoke with him last week.  In support, I sit next to him in the dentist's room and hope my own anxiety, discomfort, and fear don't affect him. Halfway through the drilling of four teeth which was quite intense, they took a little break to check in with Marlon and see if he was up to continue.  He agreed to do more but said he was most concerned about the tastes of the filling material.  With the pain and discomfort of the first part, one would think that would be the least of his worries but he is very sensitive to taste and flavour.  As it turned out he didn't gag or react too strongly so I g
Read more