October 3, 2020

-

Marlon had a pretty rough night.  Not sleeping much, restless, and uncomfortable.  So I was often right beside him in the bed and when I looked at the sweater I had been wearing in the night, the arm next to Marlon was covered in hair.  Though you can't tell by looking at him, he is constantly losing hair.  He rubs his hands though and has several strands entwined in his fingers.


He has a lot of discomfort in his back and that is from the bone marrow procedure on Thursday.  While Peter was visiting today, I took Marlon to the washroom.  After he finished washing his hands, he stepped backwards, tripped over my foot (or his shoe), scrambled but crashed to the ground before I could get him.  His scream pierced the air.  I hit the call button in the room and a nurse came.  He was pushed back to his bed. That fall aggravated his back. He said his back was paralyzed however he has been slowly recovering as the day goes on.  Last time he went to the washroom he even walked.  Any previous time after his fall which happened around midday, he refused, and had to be pushed.  I felt so bad. I should have caught him.  So close.  He is just worn out! And so am I!

So many trips to the washroom, so many attempts and still he is bunged up.  So stressful.  So uncomfortable. So…

He dislikes the food being dropped into his stomach and because they need to make sure he can tolerate it, we will not be leaving Sunday. In order to be able to tolerate it he needs to ' get the shit out!' (please excuse my language!)

After Peter left this afternoon I did go for a walk and for some groceries for myself.  Nice to get out but shortly after getting back Marlon was yelling at me for some reason for another and I was close to tears.  He is feeling so horrible, being pushed and challenged in so many ways, and he has started yelling more, like a squealing/chattering, angry squirrel.  And it is not really ok but nothing is really ok right now.  He is stretched thin and has no reserves.

They have given him all sorts of things to empty the bowels and typically avoid anything going into a child's butt: enemas or suppositories.

He was asleep but I hear his whining again.  Poor boy!

Comments

Post a Comment

Popular posts from this blog

November 10, 2022 (2)

-
Image
Today, I dropped Marlon off at outdoor school and met up with a friend I have only seen a handful of times in the last 20+ years.  She was in the area for the passing of a family member. i then went for a walk with Mina.  I watched and she poised herself in hunting position and pounced.  I saw a squirrel run up a tiny little tree but also heard this pitiful whining.  At first, confused, I wondered if she had pounced on a nest in the ground.  But the dog ran to me, crying and whining, holding up her paw.  We were a ways from home and she hobbled carefully home after we sat for a while and she calmed down.  She will often run the perimeter of fields, running this way and that.  I saw her longing to run the field as we made our way back but she was uncomfortable and limping. A short while later, I went to pick up Marlon and watched in amazement as he hobbled to the car.  Yes, he had hurt his foot within an hour of the dog hurting herself.  Both boy and dog are limping.  Just as they were
Read more

July 7, 2022

-
Image
On May 23rd, the week before the chemo that weakened Marlon enough to put him in the hospital, the dog, the boy, and I drove to Montreal. (I am aware of the use of the word 'go' when writing. In German, the verb 'to go' means walking. You don't 'go' in a car.) Before we left, as I was packing up the car, I noticed a fair sized spider web between the driver's side view mirror and the car. I left it alone, figuring the wind would blow it off. It was so nice to see Linsy and Moira and spend time with them. I have missed having Linsy around. It was neat that, when we got there, Olivia, Jamey, and Roka, their dog, were there. They live 15 minutes away from us but were there visiting their son. Mina was definitely happy to see Roka (and all the others too).   Mina got used to walking on sidewalks and being in the city. Other people and dogs, not so much. Moira has given me a belt with a dog lead on it for hands-free walking. It worked but was even bett
Read more

July 5, 2022

-
Image
Decision was made that Marlon was to go check blood counts on Monday.  We drove down to Hamilton together, quick finger poke, and then leave again.  A couple of times, we drove around the parking garage for almost a half-hour looking for a spot, but Monday was smooth.  Busy place. Blood counts are good so dental work begins.  Marlon's doctor was impressed with the dentist when she spoke with him last week.  In support, I sit next to him in the dentist's room and hope my own anxiety, discomfort, and fear don't affect him. Halfway through the drilling of four teeth which was quite intense, they took a little break to check in with Marlon and see if he was up to continue.  He agreed to do more but said he was most concerned about the tastes of the filling material.  With the pain and discomfort of the first part, one would think that would be the least of his worries but he is very sensitive to taste and flavour.  As it turned out he didn't gag or react too strongly so I g
Read more