September 27, 2020

-

 September 27, 2020


Another morning that starts pretty slow for Marlon with little appetite.  Paco made us eggs, but now Marlon has decided he is done with eggs again.  Darn!

I see him blaming food for making him feel unwell when I think the problem is not what he eats.

I lay with him for a bit. We finished watching a movie we started the other day. I did some other things for a bit and then his appetite returns.  The middle of the day, pill-free time. He ate all sorts of things.

We knew Peter and Moira would return for supper again bringing Thai food.  They did, and after pill time we ate together.  Then we looked at Linsy's pictures from her trip out West.  She came back the day before Marlon was admitted to hospital so I hadn't had a chance before.

Marlon was just quietly doing his own thing, drawing and lying down.  As much as he enjoys the visits they are a lot for him.

Sometimes throughout the day he gets quite flushed and says he feels very hot.  I am glad that there is no fever attached to those feelings. When I think of how many fevers (almost constant) he had before he started treatment I cringe.  I always thought of fevers as a healing thing - your body's way of dealing with infection or sickness.

Marlon likes the fall.  His favourite colours have been red and black (I say 'have been' because things and tastes are always changing).  He says that when the leaves turn red he sees his colour in nature.  Just realizing now his connection with red and that he has a blood sickness…  interesting how life works!

Comments

Post a Comment

Popular posts from this blog

November 10, 2022 (2)

-
Image
Today, I dropped Marlon off at outdoor school and met up with a friend I have only seen a handful of times in the last 20+ years.  She was in the area for the passing of a family member. i then went for a walk with Mina.  I watched and she poised herself in hunting position and pounced.  I saw a squirrel run up a tiny little tree but also heard this pitiful whining.  At first, confused, I wondered if she had pounced on a nest in the ground.  But the dog ran to me, crying and whining, holding up her paw.  We were a ways from home and she hobbled carefully home after we sat for a while and she calmed down.  She will often run the perimeter of fields, running this way and that.  I saw her longing to run the field as we made our way back but she was uncomfortable and limping. A short while later, I went to pick up Marlon and watched in amazement as he hobbled to the car.  Yes, he had hurt his foot within an hour of the dog hurting herself.  Both boy and dog are limping.  Just as they were
Read more

July 7, 2022

-
Image
On May 23rd, the week before the chemo that weakened Marlon enough to put him in the hospital, the dog, the boy, and I drove to Montreal. (I am aware of the use of the word 'go' when writing. In German, the verb 'to go' means walking. You don't 'go' in a car.) Before we left, as I was packing up the car, I noticed a fair sized spider web between the driver's side view mirror and the car. I left it alone, figuring the wind would blow it off. It was so nice to see Linsy and Moira and spend time with them. I have missed having Linsy around. It was neat that, when we got there, Olivia, Jamey, and Roka, their dog, were there. They live 15 minutes away from us but were there visiting their son. Mina was definitely happy to see Roka (and all the others too).   Mina got used to walking on sidewalks and being in the city. Other people and dogs, not so much. Moira has given me a belt with a dog lead on it for hands-free walking. It worked but was even bett
Read more

July 5, 2022

-
Image
Decision was made that Marlon was to go check blood counts on Monday.  We drove down to Hamilton together, quick finger poke, and then leave again.  A couple of times, we drove around the parking garage for almost a half-hour looking for a spot, but Monday was smooth.  Busy place. Blood counts are good so dental work begins.  Marlon's doctor was impressed with the dentist when she spoke with him last week.  In support, I sit next to him in the dentist's room and hope my own anxiety, discomfort, and fear don't affect him. Halfway through the drilling of four teeth which was quite intense, they took a little break to check in with Marlon and see if he was up to continue.  He agreed to do more but said he was most concerned about the tastes of the filling material.  With the pain and discomfort of the first part, one would think that would be the least of his worries but he is very sensitive to taste and flavour.  As it turned out he didn't gag or react too strongly so I g
Read more